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中华临床医师杂志(电子版) ›› 2022, Vol. 16 ›› Issue (12) : 1269 -1275. doi: 10.3877/cma.j.issn.1674-0785.2022.12.020

医学人文

公民自愿捐献器官的家庭文化模式初步探讨
贺海燕1, 谢文照1,()   
  1. 1. 410013 长沙,湖南省长沙市岳麓区中南大学湘雅三医院医学信息研究重点实验室;中南大学生命科学学院生物医学信息系
  • 收稿日期:2021-09-03 出版日期:2022-12-15
  • 通信作者: 谢文照
  • 基金资助:
    国家自然科学基金项目(72204272); 国家留学基金委资助

Preliminary research on family cultural model of voluntary organ donation

Haiyan He1, Wenzhao Xie1,()   

  1. 1. Key Laboratory of Medical Information Research, the Third Xiangya Hospital of Central South University; Department of Biomedical Informatics, School of Life Sciences, Central South University, Changsha 410000, China
  • Received:2021-09-03 Published:2022-12-15
  • Corresponding author: Wenzhao Xie
引用本文:

贺海燕, 谢文照. 公民自愿捐献器官的家庭文化模式初步探讨[J]. 中华临床医师杂志(电子版), 2022, 16(12): 1269-1275.

Haiyan He, Wenzhao Xie. Preliminary research on family cultural model of voluntary organ donation[J]. Chinese Journal of Clinicians(Electronic Edition), 2022, 16(12): 1269-1275.

目的

家属意见是器官捐献成功的关键,并深受家庭文化因素的影响。本研究立足于中国特定的文化背景,探讨我国公民自愿器官捐献的家庭文化模式。

方法

基于扎根理论,以家庭为研究单位,采用团体讨论法对15个家庭,共59位公民进行了深入研究,通过Nvivo12软件对访谈数据进行系统编码与数据分析。

结果

家属器官捐献认知与态度:在59名家庭成员中,25人赞成器官捐献,30人明确反对捐献器官且不支持家属捐献器官,仅有8人支持家人捐献器官。器官捐献家庭文化模式:基于家庭现代化理论,根据家庭器官捐献意愿是否以父亲为主导可分为父权型家庭文化模式、独立型家庭文化模式、父权颠覆型家庭文化模式。根据家庭器官捐献意愿是否受社会环境影响可分为保守型家庭文化模式、摇摆型家庭文化模式和无私奉献型家庭文化模式。

结论

我国公民器官捐献意愿受家庭文化影响较大,整体器官捐献意愿水平较低。不同的家庭文化模式对器官捐献影响不一,根据不同家庭文化模式,采取具有针对性的策略,有助于提高器官捐献成功率。

Objective

In China, family members' opinions, which are deeply influenced by family culture, are the key to the success of organ donation. This study explored the family cultural model of voluntary organ donation based on the specific cultural background of China.

Methods

Based on the grounded theory, taking the family as a unit, a total of 15 families (59 family members) were interviewed using group discussion to collect citizens' information on voluntary organ donation. Nvivo12 was used to catalog and analyze the data.

Results

Regarding awareness and attitude towards organ donation of families, among the 59 participants, 25 had the intention to donate, among whom only 8 supported their family members to sign up as donors. Thirty were unwilling to donate organs and they seemed to deny other family members to donate. With regard to family cultural model of organ donation, based on family modernization theory and according to whether the willingness of family organ donation is dominated by the father, it can be divided into the patriarchal family cultural model, independent family cultural model, and patriarchal subversion cultural model. According to whether the willingness of family organ donation is affected by social factors, it can be divided into the conservative family cultural model, swing family cultural model, and selfless family cultural model.

Conclusion

Willingness to donate organs is greatly affected by family culture, and the overall level of willingness to donate is low. Different family models have different effects on organ donation. Understanding the characteristics of different family models can help the organ donation coordinator to mediate and improve the rate of organ donation.

表1 研究对象的人口学资料
表2 公民自愿器官捐献的家庭文化模式分类
1
Huang J, Millis J M, Mao Y, et al. Voluntary organ donation system adapted to Chinese cultural values and social reality [J]. Liver Transpl,2015, 21(4): 419-422.
2
Lewis A, Koukoura A, Tsianos G I, et al. Organ donation in the US and Europe: The supply vs demand imbalance [J]. Transplant Rev (Orlando), 2021, 35(2): 100585.
3
International Registry In Organ Donaiton and Transplantation [EB/OL]. (2021-12-29)[2023-4-03].

URL    
4
黄伟, 叶啟发, 范晓礼,等. 中国人体器官获取组织发展与建设历程 [J]. 武汉大学学报(医学版), 2021, 42(02): 173-178.
5
刘永锋. 中国心脏死亡器官捐献工作指南(第2版) [J]. 中华移植杂志(电子版), 2012, 6(03): 221-224.
6
Miller C, Breakwell R. What factors influence a family's decision to agree to organ donation? A critical literature review [J]. LONDON JOURNAL OF PRIMARY CARE, 2018, 10(4): 103-107.
7
Siminoff L A, Bolt S, Gardiner H M, et al. Family First: Asian Americans' Attitudes and Behaviors Toward Deceased Organ Donation [J]. JOURNAL OF RACIAL AND ETHNIC HEALTH DISPARITIES,2020, 7(1): 72-83.
8
Stadlbauer V, Zink C, Likar P, et al. Family discussions and demographic factors influence adolescent's knowledge and attitude towards organ donation after brain death: a questionnaire study [J]. BMC Med Ethics, 2020, 21(1): 57-67.
9
Dundar H Z, Oflaz R, Cinar Y S, et al. Is Donor Age an Important Factor in Cadaveric Organ Donation? [J]. Istanbul Medical Journal, 2018, 19(3): 235-238.
10
Shaw D, Lewis P, Jansen N, et al. Family overrule of registered refusal to donate organs [J]. J Intensive Care Soc, 2020, 21(2): 179-182.
11
阎茹, 邱鸿钟, 黄海. 大学生器官捐献意愿的文化心理特征 [J]. 中国组织工程研究, 2018, 22(4): 600-605.
12
Li MT, Hillyer GC, Husain SA, et al. Cultural barriers to organ donation among Chinese and Korean individuals in the United States: a systematic review [J]. Transpl Int, 2019, 32(10): 1001-1018.
13
Huang J, Millis J M, Mao Y, et al. Voluntary organ donation system adapted to Chinese cultural values and social reality [J]. Liver Transpl, 2015, 21(4): 419-422.
14
唐灿. 家庭现代化理论及其发展的回顾与评述 [J]. 社会学研究, 2010, 25(3): 199-222.
15
张国刚. 中国家庭史. 第1卷, 先秦至南北朝时期 [M]. 广东人民出版社, 2011.
16
中国家庭发展报告 [M]. 北京:中国人口出版社, 2016.
17
李恩昌, 吉鹏程, 王军, 等. 影响居民器官捐献的若干因素与器官捐献理论体系的构建 [J]. 中国卫生事业管理, 2016, 33(12): 890-891.
18
林丹. 国民之“保守性”在何种意义上与学校教育相关 [Z]. 重庆: 2013292-299.
19
郝玉明. 论慎对中国国民性的影响 [J]. 理论界, 2010(11): 136-138.
20
郭沁. 健康行为的社会规范性影响和从众心理 [J]. 浙江大学学报(人文社会科学版), 2019, 49(1): 80-92.
21
Ng Jhony Choon Yeong, 郑佳, 贾良定, 等. 利他主义与利他行为: 三个年龄群体的扎根理论研究 [J]. 中国青年研究, 2018(7): 40-48.
22
Weiss J, Elmer A, Bechir M, et al. Deceased organ donation activity and efficiency in Switzerland between 2008 and 2017: achievements and future challenges [J]. BMC Health Serv Res, 2018, 18(1): 876.
23
Lin Y P, Chen J, Lee W C, et al. Understanding family dynamics in adult-to-adult living donor liver transplantation decision-making in Taiwan: Motivation, communication, and ambivalence [J]. Am J Transplant, 2021, 21(3): 1068-1079.
24
Pan XT, Ji Ma, Liu W, et al. Investigation and strategic analysis of family barriers to organ donation in China [J]. Transplant Proc, 2021, 53(2): 513-519.
25
龚小萍. 中美家庭文化的比较与审视 [J]. 电影评介, 2007(20): 108-109.
26
魏雅珍. 中国特色社会主义家庭文化研究 [D]. 兰州: 兰州财经大学, 2018.
27
纪芳. 并家模式下的家庭权力重构及其实践逻辑—基于苏南农村的并家经验考察 [J]. 天府新论,2020(01):96-102.
28
刘芳. 中国家庭结构变迁及发展趋势研究 [D]. 北京: 中国社会科学院大学, 2022.
29
陈熙. 家庭现代化理论与当代中国家庭:一个文献综述 [J]. 重庆社会科学, 2014, (8): 67-72.
30
Darnell WH, Real K, Bernard A. Exploring family decisions to refuse organ donation at imminent death [J]. Qual Health Res, 2020, 30(4): 572-582.
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