目的

描述癌症相关静脉血栓栓塞症（cancer-associated thrombosis，CAT）患者的疾病体验与需求，为该人群制定有效的干预方案提供依据。

方法

采用描述性质性研究方法，于2023 年1 月～6 月选取在南通市某三级甲等医院住院的12 名CAT 患者进行半结构式深入访谈，并运用内容分析法对访谈资料进行整理和分析。

结果

CAT 患者的体验及需求可归纳为4 个主题：疾病症状负担重（症状困扰多、负性情绪占主导）；疾病应对策略存在个体差异（治疗决策冲突、接纳与调试、消极回避）；疾病自我管理缺陷（ 疾病认知不足、自我倡权意识薄弱、沟通交流障碍）；渴望支持（疾病信息支持的需求、解决医患沟通障碍的需求、加强心理援助的需求、社区医疗健康服务的需求）。

结论

CAT 患者在疾病应对过程中面临症状负担重、心理障碍等诸多问题，需求不能得到及时满足，医护人员应密切关注此类患者应对疾病的特点及需求，有针对性地给予干预及改善策略，提高患者疾病应对能力及生活质量。

Objective

This study aimed to describe the disease experience and needs of patients with cancer-associated thromboembolism （CAT）， in order to provide a basis for the development of effective intervention programs.

Methods

A descriptive qualitative design was used， a purposive sample of 12 patients with CAT in a top 3 hospital in Nantong were selected for semi-structured in-depth interviews from January to June 2023， content analysis was adopted to analyze the data.

Results

The experiences and needs of CAT patients can be summarized into four themes： heavy burden of disease symptoms （many symptomatic disturbances， predominantly negative emotions）； individual differences in disease coping strategies （conflict in treatment decision-making、acceptance and debugging， passive avoidance）； deficiencies in disease self-management （insufficient knowledge of the disease、weak sense of self-advocacy， barriers to communication）； longing for support （needs for information support for the disease， needs to resolve doctor-patient communication barriers， needs to strengthen psychological assistance、needs for community medical and health services）.

Conclusion

This study found that CAT patients face many problems such as high symptom burden and psychological barriers in the process of coping with illness， and their needs cannot be met in time.Healthcare professionals should pay close attention to the characteristics and needs of these patients in coping with illness， and provide targeted intervention and improvement strategies to improve their ability to cope with illness and their quality of life.